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Wednesday, October 10, 2012

What It Is Like To Have Narcolepsy/Cateplexy

I found a vlog with a very clear description of what it is like to have narcolepsy. I posted this response:

Thank you for posting your experience. I had narcolepsy under control with a combination of Provigil and a CPAP machine until one day a car hit me while I was bicycling for exercise. Now I never get by without sleep more than 2½ hours. I am familiar with wakeful dreaming, and lost hours (even one whole day I could not recall). I do fall down drooling sometimes, but I'm asleep when that happens. Your clear definition of cataplexy eliminates that diagnosis for me.


nololtoday. (Videographer) (2010). 
Narcolepsy with cataplexy (version 2.0) [Web]. 
          Retrieved from

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I am developing a prototype resources website at Please review my plans and make suggestions.

I welcome comments that can help make this site more helpful to those experiencing similar difficulties, or for those friends, family, and professionals who take care of bicycle injury / brain trauma.victims.

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Helpful comments would include corrections of false information, references to local services that relate to my posts, or comments that help me to keep spelling, grammar, and word-choices appropriate and correct. As a brain injury victim, I depend on others to insure accuracy and to spot the kinds of errors that I may not recognize. Please feel welcome to contribute your expertise to make this site effective!