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Wednesday, October 10, 2012

What It Is Like To Have Narcolepsy/Cateplexy



I found a vlog with a very clear description of what it is like to have narcolepsy. I posted this response:

Thank you for posting your experience. I had narcolepsy under control with a combination of Provigil and a CPAP machine until one day a car hit me while I was bicycling for exercise. Now I never get by without sleep more than 2½ hours. I am familiar with wakeful dreaming, and lost hours (even one whole day I could not recall). I do fall down drooling sometimes, but I'm asleep when that happens. Your clear definition of cataplexy eliminates that diagnosis for me.




Reference:

nololtoday. (Videographer) (2010). 
Narcolepsy with cataplexy (version 2.0) [Web]. 
          Retrieved from http://youtu.be/3O-mBCYrJHk

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I am developing a prototype resources website at http://bit.ly/resourcesfortbi. Please review my plans and make suggestions.

I welcome comments that can help make this site more helpful to those experiencing similar difficulties, or for those friends, family, and professionals who take care of bicycle injury / brain trauma.victims.

Since I want this site to be helpful to victims, I reserve the right to edit comments if they seem to conflict with that goal.

Helpful comments would include corrections of false information, references to local services that relate to my posts, or comments that help me to keep spelling, grammar, and word-choices appropriate and correct. As a brain injury victim, I depend on others to insure accuracy and to spot the kinds of errors that I may not recognize. Please feel welcome to contribute your expertise to make this site effective!