Debbie Wilson's "All In a Brain Injury"

Copied from Debbie Wilson's Family Brain Injury Blog: All In a Brain Injury

Debbie M. Wilson

All In a Brain Injury

We have memory problems.
We have concentration difficulties.
We have sensory deficits like blurred vision, 

      ringing in the ears or a bad taste in our mouths. 

We can have loss of sensation and feeling. 

We can have headaches. 

Many of us have loss of balance. 

We can have light sensitivity.

We can also have noise sensitivity. 

We tend to have mood changes. 

We tend to become depressed or anxious. 

We may have chronic fatigue. 

We may have sleep disorders. 

We may be confused. 

We may have speech and hearing deficits. 

We may lose judgement and reasoning abilities.
We may stay angry a very long time. 

We are usually not sure who or what we are angry about. 

The truth is we do not know ourselves anymore! 

We are usually the last to know or realize the extent of our injuries.

Many of us also have PTSD. 

Others of us have seizures. 

Please, if you see our symptoms, help get us the help we need. 

We need support, encouragement and hope. 

We need faith that we
can overcome our many deficits. 

We need immense understanding as we lost "ourselves." 

It is difficult to again find our way. 

Our futures are full of unknowns and extremely hard work. 

We are like a brand new person, starting all over again.
None of us wanted to start all over again. 

We may be resistant and we may deny, deny and deny.
We need nurturing and we need guidance to again find our way. 

We are unique in every way.

What the brain is able to again do 

will astound even those that do not believe in miracles. 

We are survivors in a special league. 

Many of us had experienced loss of family and loved ones prior to brain injury. 

These loses were heart breaking and hard to accept. 

They did not prepare us for the total and complete loss we have felt 

      as a result of our "loss of self!" 

We are brothers and sisters 

     as a result of the uniqueness of our loss. 

We believe we are the only ones 

     that can truly understand the magnitude of our loss. 

Together we are stronger, 

     and we learn tips that help us move forward. 

Please be kind and patient with us. 

If you have not experienced loss of self 

     it is very hard to comprehend. 

Please just sympathize and empathize with our loss. 

We are a group that has a tendency to far surpass anyones expectations or dreams. 

We are the "ultimate survivors" in every sense of our existence! 

We were chosen and are all an honor and a blessing to know!


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Life with TBI

David Lloyd

2 seconds ago near Plymouth

So many tasks seem on-track until that moment when I suddenly ask myself, what am I doing? It happens many times each hour, and it just happened again. — feeling tired.

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Expressing a little frustration

I need a better brain. One that will give me the word I need to use the moment I need to use it, not making me "click retry" a dozen times first! I need a brain that will click as fast as the inner self that's trying to get things done, not having to stop every couple of hours to get over brain fog. I don't need one set of people telling me to lower my expectations, while another set of people tells me I'm not trying hard enough. I need a way to work around having to stop all the time to "get my bearings" because at some critical point in a process I forgot what I was doing. I have things to do, and I can't be held back by faulty equipment. There has to be a way to work around these limitations!

I am tired of people questioning me every step along the way, stealing what mental energy I DO have because they can't or won't or won't admit they can't help me. I am tired of people trying to tell me to change my plans. I am tired of people telling me to be realistic. I am tired of well-meaning people telling me they will help me, but not helping me at the moment when I can use the help. I am tired of people getting back with me, ready to help, when I no longer recall what I wanted from them.

Sleep, Learning, and Memory

Dr. Robert Stickgold discusses how sleep plays a role in memory, both before and after a new learning situation. (Click below to view.)

I've said this for years, both from personal experience, and based on a rudimentary understanding of neural networks (such as the brain) SLEEP is necessary for memory. It is necessary BEFORE learning to ensure attention. It is necessary AFTER learning to ensure assimilation and recall.

Sleep, Learning, and Memory | Healthy Sleep - http://s.shr.lc/YznzQj

Sleep, Learning, and Memory | Healthy Sleep

healthysleep.med.harvard.edu

Debbie Wilson's Family Brain Injury Blog: Imaging Technique Could Help Traumatic Brain Injury Patients

Debbie Wilson's Family Brain Injury Blog: Imaging Technique Could Help Traumatic Brain Injury Patients: "A new application of an existing medical imaging technology could help predict long-term damage in patients with traumatic brain injury, according to a recent UC San Francisco study. "

'via Blog this'

Overlooking symptoms?

Overlooking symptoms?

Well THERE's your problem...

'via Blog this'

I frequently overlook those symptoms that don't bother me when I discuss symptoms of my brain injury.

IN THE NAME OF BRAIN INJURY

IN THE NAME OF BRAIN INJURY:

The following was posted on Facebook by another brain injury survivor. I reposted it here:

... "loss of self" was an unthinkable loss. It is a different loss than others EVER experience... 

Read Debbie Wilson's insightful post below.

'via Blog this'

Debbie M. Wilson