I think I've accomplished a lot of things today. I just don't recall doing them. As I sit here typing, I realize I'm late to go shopping with my daughter to get a tie for her upcoming wedding. The time is 3:00 pm, but I feel as if I just got up and am still planning what I'm going to do today. According to notes I have already written today, I have ordered parts to fix a leaky faucet, I have fixed my daughter's network connection to my printer so she can print. I have missed two appointments, written notes to the people I stood up, apologizing. I have rescheduled an appointment, I have cancelled another appointment that conflicted when I rescheduled. I have sat here feeling bad because I know in the past I would not have tolerated my own incompetence from others. I certainly would not have understood what has become a fact of existence for me now.
Living with faulty short-term memory is sort of like having Alzheimer's syndrome, except that I have hope the decline will eventually stop and I may get better some day. I'm sure there are plenty of other differences. I remember my life prior to my accident, and I "sort of" remember my life after my accident, if you allow for the way I have clipped together notes I wrote along the way, and studied my own "history" to fill in the gaps. One of my biggest struggles is the recognition that I "make stuff up" when I don't remember. It is very humbling to not be able to depend on my own memory.
I try to be productive, but it is hard to be productive when I literally on live "in the moment." I try to plan, but side-tracks to my planning happen all the time. Meanwhile I get more and more tired until I have to stop everything and take a nap, because experience has shown that trying to continue once tired results in increasingly dangerous confusion.
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I am developing a prototype resources website at http://bit.ly/resourcesfortbi. Please review my plans and make suggestions.
I welcome comments that can help make this site more helpful to those experiencing similar difficulties, or for those friends, family, and professionals who take care of bicycle injury / brain trauma.victims.
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Helpful comments would include corrections of false information, references to local services that relate to my posts, or comments that help me to keep spelling, grammar, and word-choices appropriate and correct. As a brain injury victim, I depend on others to insure accuracy and to spot the kinds of errors that I may not recognize. Please feel welcome to contribute your expertise to make this site effective!